Many Dravet’s Syndrome sufferers, usually small children, have seen the end of severe seizures due to the use of CBD oil. CBD for epilepsy conditions with severe and uncontrolled seizures such as Dravet’s Syndrome can no longer be questioned.
Another Irish Dravet’s patient can’t wait for CBD oil for epilepsy to be passed by parliament.
5-year-old Sophia Gibson, from County Down, suffers from intractable epilepsy and the risk of her not surviving one of the 30-odd severe seizures she suffers daily grows as she gets older. The BBC spoke to her mom and dad, Danielle and Darren Gibson.
Cocktail of medicines
Danielle says the cocktail of medicines Sophia is on is not having an effect on the seizures. She and her husband believe that CBD oil could save Sophia’s life by reducing the number of seizures radically.
The oil obtained from Charlotte’s Web cannabis, a strain of hemp, is high in cannabidiol or CBD, and very low in THC or tetrahydrocannabinol, the psychoactive compound found in cannabis which produces the euphoric effect or “high”. CBD oil has not been licensed in the UK, although synthetic CBD medicine has been on trial and the Gibsons were told the medicine should be approved by next year.
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Parliament in discussion
The Irish parliament is also currently in debate on the issue of legalizing medicinal use of cannabis. This is after another Dravet’s patient’s mom, Vera Twomey, started a 150 mile walk to get the attention of health minister Simon Harris.
The Gibsons and other parents are following the discussion with great interest. But time is of the essence for Sophia, as her chance of Sudden Unexplained Death in Epilepsy (SUDEP) increases by the day. Mom Danielle says every morning when she wakes Sophia, she is afraid she won’t wake up.
This is a terrible fear for any parent to live with, and unimaginable for any parent with healthy children. How can anyone not have compassion for the Gibsons?
Support for the bill looks positive
People Before Profit TD, Gino Kenny, proposed the bill, and seemingly has the support of 90 TD’s, which will ensure passing through the House.
Health minister, Simon Harris, gave Vera Twomey his assurance that his department will review the Irish policy on medical marijuana to the best of its ability and will get expert advice.
CBD oil for Dravet’s
The cannabis-based medicine, Epidiolex showed very positive results in the treatment of Dravet’s patients. It is expected to be approved by the FDA early next year in the US, and will roll out later in the year across Europe. Experts are very excited about the medication, because it will provide them with consistent dosage and batches, which is not always possible when using CBD oil.
The benefit of using CBD oil for Dravet’s on the other hand, includes what is known as the “entourage effect” because all the molecules in the plant are intact. This means the synergistic action between compounds naturally found in the cannabis plant can’t be achieved when using CBD only, making the medicine less holistic. But for children with Dravet’s, anything that reduces seizures will be welcomed.
Primary source: http://www.bbc.com/news/uk-northern-ireland-38162789