Sienna Cooper was diagnosed with Doose syndrome at the age of three. It is a rare form of epilepsy, which is drug resistant. She has more than 100 seizures a day and even though she is on many different medications, none of them seems to control the seizures. Her mom wants medical cannabis epilepsy treatment for her child and has gone public with her plea for compassion.
The online petition is gaining widespread support and is calling on the government to give children such as Sienna immediate access to medicinal cannabis. Please click the link above to sign!
Seizures stop breathing
Yvonne had another traumatic episode with her daughter the night before the interview. Sienna couldn’t breathe and her mom had to perform CPR while waiting for the ambulance. Paramedics were called more than eight times to Sienna’s school to resuscitate her. They have also been called to her home many times, Yvonne and her partner Daniel say they feel completely helpless.
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Sienna’s health declined radically in the last 12 months, and specialists say they have tried everything. Ms Cooper disagrees. They haven’t tried medicinal cannabis, even though there is ample proof of it stopping seizures. She says she has no intention of breaking the law, but she also doesn’t want her child to die. If medical cannabis epilepsy treatment can save her baby girl, then Sienna should get it.
There’s supposed to be a legal way to get cannabis epilepsy treatment, but Yvonne says there are no doctors who can direct them on the right path. She’s explored every avenue including clinical trials, but the waiting lists are extremely long. Sienna simply can’t wait that long.
The medication Sienna has been on has had disastrous effects on her health. She suffers severe side effects such as liver and kidney impairment as well as anemia. Her mental abilities have also diminished over the last six months and her IQ has dropped from 90 – 100, to 42 – 52.
Medicinal cannabis is not a first line treatment of choice, but prescription medication is not working. In desperation, Yvonne started the petition for access to medical cannabis epilepsy treatment
Cannabis epilepsy treatment: MP wants life-saving access
MP for Cunningham, Sharon Bird, supports the amendments to the Therapeutic Goods Act for accelerating access to drugs that could save lives.
She spoke in parliament and said laws and policies must be streamlined to help people with life-threatening conditions. She cites the case of Ben Oakley who used to have up to 600 seizures a day. Now that he is on cannabis epilepsy treatment, he has only had three seizures in two years.
But the Coopers can’t wait for the wheels of law and politics to turn. They need help, and they need it fast. The petition’s title reads: “Health minister, our baby girl is dying in front of us – please help!” Let’s build momentum for that petition. Here’s the link again. Click and sign. It’s the least you can do!