Senator Bob Onder, a physician, successfully blocked a measure intended to give families access to the CBD cannabis oil extract they need for children suffering severe seizures.
House Bill 1007 sponsored by Representative Jean Evans, would have helped families to obtain cannabis oil. It would have expanded the list of qualifying conditions, and it would have increased the level of THC allowed in some cases. River Front Times spoke to some of the disappointed parents affected by this move.
Some parents are prepared to break the law
One mom, Valerie Naureth, says she is prepared to break the law. If her son, Arik’s life depended on her getting CBD oil from Colorado, she wouldn’t even hesitate. Arik, four years old, suffers severe epileptic seizures.
Naureth lives outside of Columbia, Missouri, and doubted that the senate would pass the bill. She suspects Onder will block it again. Then, she will just buy CBD, the non-psychoactive compound found in cannabis, illegally and bring it to her home. Moving her family to a state where CBD is legal isn’t as option as far as she’s concerned. She feels she shouldn’t have to break the law to help her son get the only medicine that works for his epilepsy.
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Some are prepared to move to another state
Sarah Lango, mother of a sixteen-month-old daughter, Avery, says she would move state to get access to CBD oil for her baby’s potentially lethal seizures. Each seizure can last up to two hours.
Lango says Avery needs CBD cannabis oil with slightly higher concentrations of THC. She is very frustrated by the fact that someone who has no idea of what she is going through controls her life.
Senator says no to extended list of conditions
Onder is an allergy and asthma specialist. He is in favor of access to CBD oil for children with severe uncontrolled seizures, but he opposes the bill. It suggests making provision for conditions such as MS, Parkinson’s and AIDS, and he finds the spectrum of conditions too wide.
Onder justifies his opposition to the bill by the fact that the FDA does not approve CBD as a treatment or cure for any condition. He says he has a problem with states overriding the federal process and supporting non-approved medications.
CBD cannabis oil industry could die
If Onder sticks to his opposing view it means two licensed facilities in Missouri’s battling medical marijuana industry might have to shut down. BeLeaf in Earth City and Noah’s Arc Foundation in Chesterfield both only produce CBD oil.
The biggest problem they experience is that in Missouri, only neurologists are allowed to prescribe CBD oil. The HB 1007 bill will give many more kinds of doctors the authority to prescribe CBD oil to patients.
Patients go online for CBD cannabis oil
Mitch Meyers from BeLeaf says that getting access to CBD cannabis oil is very difficult. For example, a pediatrician can’t prescribe it, even if he or she knows it could offer a solution. As a result, many families are suffering needlessly.
In desperation, they buy cannabis oil online, but he worries that they don’t know what they’re getting.
Senator ignores research findings while time runs out for kids
There is currently enough scientific evidence in favor of CBD cannabis oil as a treatment for epilepsy.
The FDA is expected to approve Epidiolex, a CBD-based drug for intractable seizures very soon. But for many families, waiting another day for CBD will be too long. Violent and protracted seizures can cause severe brain damage or even kill. Should children be allowed to suffer or even die, just because one senator doesn’t like states to be ahead of the FDA?